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Schizophrenia Resources: (continually under construction!)
SARDAA knows how important obtaining knowledge about schizophrenia and related disorders is to those affected. To help you in your search for more information about schizophrenia, SARDAA would like to provide information about sources that are relevant to many of the topics surrounding the diagnosis. Rather than provide an alphabetical list of links, we have chosen to group the resources by categories that reflect more topical groupings. Often sites will contain far more than the topic heading it is listed under as well as provide links for further research.
SARDAA is interested in helping those interested in schizophrenia come to a greater understanding about the disorder and recognizes that there are no simple solutions nor magic cures for this complex condition that affects people in many different ways. Just like many physical diseases, there are variations of symptoms and varying methods of treatment. To suggest one approach to the exclusion of others may deny access to what may be an effective treatment. It is the desire of SARDAA to provide as much information as possible about opportunities to promote recovery from schizophrenia. Our signature program, Schizophrenics Anonymous, is one method that has proven effective in helping many people find a personal place of recovery. SARDAA hopes that providing links to resources here helps you find valuable information about schizophrenia that will help you navigate the myriad of issues presented by schizophrenia whether you are a person with the diagnosis, a family member, a loved one, advocate, or just have an interest in learning more. SARDAA welcomes information that you may have regarding additional resources that may be of interest to our visitors. Please refer to the Contact SARDAA page and we will consider adding them to our list.
- Mental Health America is an organization dedicated to helping all people live mentally healthier lives.
- NAMI, the National Alliance on Mental Illness, is the nation's largest grassroots organization for people with mental illness and their families.
- WFSAD Site for the World Fellowship for Schizophrenia and Related Disorders
- Schizophrenia.com is a encyclopedic site with a wealth of information, support and education related to the disease.
- National Institute of Mental Health The National Institute of Mental Health (NIMH) is the largest scientific organization in the world dedicated to research focused on the understanding, treatment, and prevention of mental disorders and the promotion of mental health.
- Schizophrenia Research Forum is dedicated to information about research being done on schizophrenia.
- NARSAD the National Alliance for Research on Schizophrenia and Depression is the world's leading charity dedicated to mental health research.
- Schizophrenia Research Journal An international journal that publishes research that contributes to the understanding of schizophrenic disorders.
- Genetic Study National Institute of Mental Health site.
- The Music Festival for Mental Health An annual event that has raised over 53 Million dollars for mental health research since 1995.
- Schizophrenia Digest is a quarterly publication containing stories of hope and inspiration for those interested in schizophrenia. It covers not only inspirational stories but offers updated information about current news and events in the treatment of the disorder.
- Coping with Life a blog written by Tom Davis, 2004 Rosalyn Carter fellow 2004. A site that deals with life in general and mental health in particular.
- About.com Mental Health Schizophrenia Topic page on general mental health site.
- Canvas The website for a remarkable movie that portrays the realities of schizophrenia and a family's struggle to deal with the issues involved. Directed by Joe Greco who's mother suffered from the disease.
- Out of the Shadow An Award winning movie by Susan Smiley about her mother who suffers from schizophrenia
- You Tube A search of videos relating to schizophrenia will return a remarkable variety of information. Warning! Some may be unrelated to the disorder and contain inappropriate or offensive material.
- American Psychiatric Nurses Association The American Psychiatric Nurses Association, APNA, is a professional membership organization of nearly 5,000 members committed to the specialty practice of psychiatric mental health nursing, health and wellness promotion through identification of mental health issues, prevention of mental health problems and the care and treatment of persons with psychiatric disorders.
- American Psychiatric Association Professional site for members of the American Psychiatric Association.
- American Psychological Association This is the American Psychological Association's schizophrenia topics page.
- SAMHSA is the Substance Abuse and Mental Health Services Administration, a division of the US Department of Health and Human Services.
- Center for Mental Health Services administers programs as a function of SAMHSA
- Social Security The web site for the Social Security Administration.
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No Kidding Me too! A nonprofit organization comprised of entertainment industry members united in an effort to educate Americans about the epidemic related to brain dis-ease in all forms.
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The Awakenings Project An award-winning coalition of artists, writers, actors and musicians who stand apart from the ordinary in that they live with psychiatric illnesses.
- Steve Smith An artist with schizophrenia that shows that artistic talent is combined with illness. Like others who suffer physical ailments, Steve does not let his diagnosis keep him from pursuing his passion for creating art.
- Tracy Moore A contestant for American Idol, Tracy went face to face with Simon Cowell and came away with the evaluation that yes, she could sing!
- Matters of the Mind is a web site that is created from the perspective of a family advocate. It focuses on topics as well as personal stories of dealing with mental illness issues.
- Wikipedia Books An explanation of the difference between the rehabilitation and recovery models of treatment. An important conceptual guide for those not familiar with the referenced terms.
- Center for Psychiatric Rehabilitation The Boston University Center is a research, training, and service organization dedicated to improving the lives of persons who have psychiatric disabilities.
- Dual Diagnosis A site that addresses the issues of co-occurring disorders of mental health and substance abuse.
- American Self-Help Group Clearinghouse A listing of nationally recognized self-help organizations. A searchable database resource guide.
- Assertive Community Treatment Association ACTA promotes, develops, and supports high quality Assertive Community Treatment (ACT) services that improve the lives of people diagnosed with serious and persistent mental illness.
- International Association of Psychosocial Rehabilitation Services (IAPSRS).
- National Mental Health Consumers’ Self-Help Clearinghouse.
- Seeds of Hope Books offers books for teenage youth that deal with the issues of living in a family where a parent suffers from mental illness
- Rose Hill A remarkable story of a family's commitment to helping their son and extending help that to hundreds of others.
- ICCD the International Center for Clubhouse Development. ICCD clubhouses are founded on the realization that recovery from serious mental illness must involve the whole person in a vital and culturally sensitive community.
- Mind Your Mind a site created by and for youth to aid in the treatment of mental disorders.
- Bazelon Center for Mental Health Law For three decades, the Judge David L. Bazelon Center for Mental Health Law has been the nation's leading legal advocate for people with mental disabilities.
- Bureau of Justice Assistance This program funds projects that seek to mobilize communities to implement innovative, collaborative efforts that bring systemwide improvements to the way the needs of adult offenders with mental disabilities or illnesses are addressed.
These links are just a start to the resources available for you to research. The lack of a resource to which you may be familiar does not indicate a lack of support nor necessarily a lack of information about that resource. These sources are but a starting point to explore the wide range of information about the disease, treatment, research, hope and inspiration. We welcome your input about sites that you would like to see referenced as sources for information about this important health issue.
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Last modified: 11/15/08 -
