LAST DAY!

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Bravelets logoFor every bracelet (or other item) you buy from Bravelets this month, SARDAA will get a $20 donation (if we sell a minimum of 100 items).

https://bravelets.com/bravepage/sardaa

Margery’s Picks and Pans: April Book Review

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Book Reviewed:      The Day the Voices Stopped: A Memoir of Madness and Hope

By Ken Steele and Claire Berman

The Day The Voices Stopped cover picCopyright 2001

Available on Amazon.com for $11.61   Kindle Edition  $9.99

Reviews of this book:

“Astonishing …. A mind-boggling account that will change the way readers respond to mental illness.” –Kirkus Reviews

“The Day the Voices Stopped will move you to tears, to anger and to action.” –Laurie Flynn, Former Executive Director, NAMI

“Steele’s sobering yet resonant and inspiring narrative refuses to sugarcoat the tremendous force of this disorder.” –Publishers Weekly

“The Day the Voices Stopped is not only gutsy, but gut-wrenching… This book represents a testament to the triumph of the human spirit, Ken’s indomitable will.” –The Pharos

From the book: “Fourteen-year-old Kenneth Steele was listening to the radio at his home in Connecticut when he first heard the voices.  Like Nobel Prize-winning mathematician John Nash – whose life story has been immortalized in A Beautiful Mind – Steele was to spend the next thirty-two years living with the devastating symptoms of schizophrenia: tortured by inner voices commanding him to kill himself. Ravaged by the delusions of paranoia, barely surviving on the ragged edges of society.  In this inspiring story, Steele tells the story of his hard-won recovery from schizophrenia and how activism and advocacy helped him regain his sanity and go on to give hope and support to so many others like him.”

“Once upon a time there was a man named Ken Steele,” I will tell (my children) someday when they hold this book in their hands and are old enough to understand.  He was an American hero,” I will say. –Claire Berman

Ken Steele died on October 7, 2000,

Peacefully, in his own bed.

He would have been fifty-two on October 9th.

How I came to read this book:

Actually, a friend told me about this book on the telephone. I liked the title so I went out and got it. I started to read it and at once like the clear and transparent writing style. The book is well written. It is easy to read. When I got to the third chapter, after Ken is expelled from his home and family by a father who doesn’t want to deal with him or his illness, I was a bit shocked when Ken ends up being lured into a life of male prostitution as a teenager. His traumatic story goes from bad to worse from there, and he spends the next thirty-two years on the streets and in mental institutions, the victim of the relentless voices that insistently tell him to kill himself, which he attempts numerous times. This is definitely a survival story, a memoir of a man faced with insurmountable odds, but who, in the end, overcomes all and thrives. I especially liked the last chapter, in which Ken clearly outlines the political gains made for mental illness by various presidential edicts and acts of Congress. It made me wish that Ken were still around to do the same now.

If you want to read a story about hearing voices from a first person point-of-view, read this book.

If you want to read an incredible survival story, read this book.

If you want to understand how mental illness can affect a person, read this book.

If references to male prostitution, male rape of a teenager in a mental institution, or the male gay lifestyle would offend you, then don’t read this book.  Ken tells his story in a no-holds-barred fashion, and these facts are all a part of his story.

So, I pick this book, thumbs up, with that qualification!

by Margery Wakefield

SARDAA Executive Director, Linda Stalters attended Rep. Tim Murphy’s hearing: “Where have all the patients gone?” and the American Enterprise Institute (AEI) event, entitled “Fixing the mental health care system: What Congress can do,” in Washington, D.C.

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Linda Stalters and Rep. Tim Murphy

Linda Stalters and Rep. Tim Murphy

In 1950 there were more than 559,000 psychiatric beds in the United States, today there are fewer than 45,000. This staggering lack of inpatient options for those with serious mental illness has put a tremendous strain on public services. Rep. Murphy convened an investigative hearing this week to explore the effects of this shortage, which convened leaders from the criminal justice, law enforcement, and medical communities to testify on how the failures of the mental health system are stressing police forces, jails, and emergency rooms.

The President of the New York State Association of Chiefs of Police, Michael Biasotti, spoke extensively on the need to expand the use of the Assisted Outpatient Treatment (AOT) model of care. AOT, which is a cornerstone of Rep. Murphy’s Helping Families in Mental Health Crisis Act (H.R. 3717), is an evidence-based alternative to inpatient care for those who need treatment and allows them to lead productive lives in the community. In New York, this medical model has decreased homelessness, repeated hospitalizations, and incarceration of those with mental illness by more than 70 percent.

AEI panel 1Until this week the federal government had never incentivizes AOT. But on Thursday, the House passed the Protecting Access to Medicare Act, which includes a section authored by Rep. Murphy to encourage counties to establish AOT programs. The bill is expected to be considered in the Senate and signed on Monday. You can read more about Rep. Murphy’s successful legislative efforts here.

“The legislation passed today is a tremendous step forward in expanding mental health services, and gives our effort to bring mental illness out of the shadows a major momentum boost as the Helping Families in Mental Health Crisis Act moves through the Energy and Commerce Committee,” said Rep. Murphy.

The Helping Families in Mental Health Crisis Act, which now has 60 bipartisan cosponsors, will be the focus of the a legislative hearing on at the Energy and Commerce Subcommittee on Health. This is the first step in the process of bring the legislation before the entire House of Representatives for a vote.

The hearing will focus on how the Helping Families in Mental Health Crisis Act addresses the structural deficiencies in the federal mental health system. Chairman Murphy’s investigations has revealed that individuals diagnosed with a severe and persistent mental illness are more likely to end up in jail or on the streets because they aren’t getting the treatment they need from our broken mental health system.

On Friday morning, Rep. Murphy announced this critical legislative step at a public policy forum he headlined at the American Enterprise Institute (AEI) in Washington, D.C. The event, entitled “Fixing the mental health care system: What Congress can do,” also featured former Congressman Patrick Kennedy (D-RI); American Psychiatric Association President Jeffrey Lieberman, MD; AEI scholar Sally Satel, MD; and E. Fuller Torrey, MD, of the Stanley Medical Research Institute. The forum will be aired soon on CSPAN and can be viewed on the AEI web site.

It’s No Substitute for the Sun

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My psychiatrist is a fan of “happy lamps,” lamps that use full-spectrum bulbs to treat wintertime seasonal depression. A really big fan. Opening his office door is like entering a scene in “Poltergeist”: I’m blinded by a powerful glow that emanates from every direction. I must rely on his voice in the distance calling out to me in order to orient myself. This is how our appointments begin: I go toward the light.

His phototherapy light is essentially the size of a big-screen TV. This gives our appointments a sci-fi type of atmosphere, as if we’re meeting on a holodeck in “Star Trek.” I stare at his theatrically warm smile and his very white, bright teeth, which themselves seem to be glowing. He appears to be an entirely different species than me — a much happier one. He’s a light eater. It seems to have made his skin glow, to have fortified his enamel.

Meanwhile, the only thing I’m radiating is desperation. It feels as if it’s been winter forever, and the forecast is for more of the same. Basically, I want some of whatever he’s on, pronto.

by Alissa Nutting, The New York Times

Full Article

Protein Active in Fetal Development May Also Protect Against Alzheimer’s in Late Life

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A new study published yesterday inNature suggests that a protein thought to be a key element in the brains of fetuses during development may play a critical role in dementia in older people. The protein, known by the acronym REST, is severely depleted in the brains of older adults with Alzheimer’s disease (AD) and other dementias, but seems to offer protection against those disorders in healthy older adults….

“Whereas typical genetic investigations focus on genes and proteins that increase the risk of specific diseases, this study examines the role of a protective protein—REST—that appeared to reduce the risk of developing dementia in highly vulnerable older adults with multiple plaques and tangles in their brains….”

….the reported association of lithium with promoting REST activity may open new windows into our understanding and possible treatment of dementias. It may also shed new light on the cognitive impairment that is commonly seen in people with mood disorders.

–Psychiatric News Alert

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Study Finds 10 Percent of Young Hospital Patients Have Psychiatric Diagnoses

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Between 17% and 22% of these patients had a primary or comorbid mental health diagnosis, and all the hospital stays added up to $3.5 billion in aggregate charges to the health care system. The most common diagnoses at the general hospitals were depression (44.1%), bipolar disorder (18.1%), and psychosis (12.1%). Substance abuse was a common comorbidity. In the freestanding hospitals, depression (42.2%), externalizing disorder (10.8%), and bipolar disorder (10.6%) were the most common psychiatric diagnoses.

–Psychiatric News Alert

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Family-Focused Therapy Reduces Bipolar-Associated Symptoms in Teens, Study Finds

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Family-focused treatments have been found to be an effective adjunctive therapy to mood stabilizing medicine in adults with bipolar disorder, but whether this approach holds true in adolescents, has been unclear….New study results showed that adolescents receiving combinational pharmacotherapy and FFT were more likely to have less-severe manic symptoms after two years than those receiving pharmacotherapy with brief psychoeducation.

–Psychiatric News Alert

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Correction Dept. Investigating Death of Mentally Ill Inmate at Rikers Island

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The New York City Correction Department is investigating the death of a mentally ill inmate who was found in an overheated cell last month at Rikers Island after being left unattended for hours, the authorities said Wednesday.

The inmate, identified as Jerome Murdough, 56, was a homeless former Marine who had been arrested on a trespassing charge. He was found dead in his cell at the Anna M. Kross Center at Rikers Island on Feb. 15, officials said.

 by Michael Schwirtz, The New York Times

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Have You Ever Been Involuntarily Treated?

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How did that experience affect your recovery? Please send us an email with your thoughts on this topic. Your responses will be confidential and will be used to help us understand what our constituents’ experiences have been.
In your email, please indicate whether you would authorize a SARDAA staff member to contact you for further details.
Send To: info@sardaa.org
Thank you,
Linda Stalters, MSN
SARDAA Executive Director

SAVE THE DATE: SARDAA Film Festival & Hoedown

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Saturday, May 17, 2014

10 am -4:30 pm

Houston Westchase Marriott

In the pursuit of our mission to eliminate the stigma of serious mental illness, especially schizophrenia and related disorders, we are hosting a unique film festival here in Houston. Four films will be shown with time for Q&A after each, led by those involved with the film. A hoedown-themed party and dinner will follow.

(240) 423-9432

info@sardaa.org

Film Entry Information

Sponsor and Exhibit Opportunities

Film Festival & Hoedown Flyer

Houston Westchase Marriott Group Rate