WHY SA?

Margery WakefieldBy Margery Wakefield (and friends)

Tonight I am getting together with my friends – my friends being a dozen or so schizophrenics from the Denver, Colorado area. We get together every Monday night from 7:00 to 8:00pm to share our experiences, strength and hope with one another. In other words, to have an SA group.

We are like family–extended family. We have been meeting like this for 8 ½ years, at least, some of us. We have celebrated birthdays together, deaths of parents, triumphs in life, losses, and the joys in overcoming obstacles that only schizophrenics can truly appreciate.

We are the forgotten minority–the last group of people in the world to experience stigma. Cancer, divorce, gay marriage, and even AIDS are now more accepted. But say the word “schizophrenia,” and people still wince. Shootings come to mind, violent acts of the tiny percentage of us who are off our meds. Most schizophrenics are far more likely to harm themselves than anyone else.

What is apparent in our group is that we schizophrenics have enormous talent! I am a frustrated concert pianist, a writer of six books. P. is a wonderful portrait artist. L. is also an extremely talented artist, as well as being a lawyer. G. sings like an angel, even a capella. C. plays a mean Chopin Prelude and has a phenomenal memory for Bach. T. teaches art, even to us. M. does crochet, unusual for a guy! M. writes stories. Etc. Etc.

In our meetings, we have the serious business of SA. We have a structured meeting. First we have a minute of silence, then an affirmation from the affirmation book. Then some varied readings from the Blue Book – we vary them from week to week. Then we turn to the 6 Steps and read them. Then we go around the circle, and each person takes a step that applies to his or her day or week, and we discuss them. Then, it is time for the weekly check in. Everyone comments on how the week went, problems with symptoms, problems with medications, victories, outings, work related events, etc. During the check-in, we make sure that everyone is doing OK, and if they aren’t, we deal with it as a group. Are they on their meds? Are the meds not working? Do they need an emergency appointment with their doctor? Do they need to go to the hospital? Do they need a ride to the hospital? Etc.

In SA meetings, as opposed to 12-Step meetings, we encourage crosstalk, feedback, and advice giving. It is a more relaxed and informal meeting than say, AA. That is the charm of SA.

Tonight we had two new members, younger members, ages 19 and 20. They are the future of SA. They promised to come back, and I think they will. They seemed to enjoy the meeting, even though the rest of us are older. We made them feel welcome.

SA is a social educational group. In our group, we have fun! There are talent nights, in which each person brings a creative offering. We have potlucks and pizza nights. We have art nights, and an annual swap meet in which members clean out their closets and bring their “trash” and put it on the boardroom table, then – on the count of three – the members pick out what they want from the table. One man’s trash is another man’s treasure. It is true. We have a coffee group on Saturdays, and a walking group when the weather is nice. We go to concerts together, and museums and movies. We socialize with each other. We ARE like a family, although new family members are always welcome.

Now I want you to hear what some of the members wrote tonight about what the group means to them:

“Being in SA for the past 8 years has been one of the most valuable experiences of my life. I have made many good friends who accept me in spite of my illness. I feel a true sense of camaraderie and closeness which I did not experience in the 12-step groups I have attended. I am truly grateful that SA has come into my life.”   R.

“SA shows me that I am not alone in dealing with my mental illness and it helps break down the stigma of mental illness. SA gives me inspiration to “get over” my mental illness and gives me examples to shoot for.” S.

“This group meeting helps me realize that I have a mental illness. It also keeps me connected.” B.

“SA keeps tabs on us, and if you’re falling through the cracks, they tell you to talk to your doctor, and the buck stops here and you check with your doctor.” G.

“SA means to me that I am not alone and there are people out in the community who understand what I go through.” C.

“SA has provided me with a wonderful circle of friends. Without them, I don’t know what I’d do – except feel very alone. I’d like to keep these friends for life. They keep me sane – and alive!” C.

“SA keeps me out of the hospital. We’re a small group, and I get enough attention about my illness.” M.

“SA provides me with a social network and support.” G.

“SA is a place where I can set goals, and receive emotional support.” C.

Why SA??? Because it works! Please don’t change a thing…. MW

Reflection of Memorial Day

Memorial Day was great this past weekend. Normally, this is a somber time for those of us who are veterans. As a veteran I can tell you that often I do not look forward to these veteran holidays and July 4th due to the fact that it often times brings up memories of not being able to do more to serve the country, and there is survivor’s guilt knowing that so many of our fellow Marines, Airmen, Sailors, Soldiers, and Coast Guardsmen have died in the wars.

This past weekend was great though. Activities everywhere brought back a sense of nationalism that often times seem lost in the narrative of our country these days. But I’d like to speak about something different about this Memorial Day.

On my twitter feed Monday Anthony Bourdain said, “Remember the fallen, the wounded and let us make SURE we start paying some real attention to all the sufferers of TBI.” Some celebrities are understanding the effects of service members with wounds that can’t be seen.

This one statement by a celebrity was courageous in and of itself. Yes, let’s start paying attention to traumatic brain injury and other unseen illnesses. Thank you, Anthony Bourdain!

 

Capture

Mental Health and the Media

The media, mental illness, and another shooter is securing the spotlight on a holiday that is meant for memorializing our heroes and honoring them. It is troubling and sublimely disheartening that our media focuses on yet another shooter. The most troubling aspect of this is that the media consistently no matter which shooter it is speculates that they have schizophrenia. It’s a dilemma that is all too familiar for those of us who have schizophrenia.

 

Today, I heard numerous mentions of schizophrenia on the news and none of it was good. Schizophrenia is the cop-out, the AIDS of mental illness, and the only mental illness that media ignores until it is time to bring it out in order to demonize, stigmatize, and enable the perception that the individuals with it are inhumane, cruel, or subhuman.

 

The reason this is the case is because the media doesn’t know any better. They haven’t seen the good in each of us. How we care for one another and encourage one another. How we live among them. Because it has been in the closet for so long.

 

The statistics with mental illness and violence are there for anyone that does a simple search of “Mental Illness and Violence” in Google. The statistics show that the significance of the mentally ill and violence is small and relatively insignificant. The statistics show that people with mental health problems are more likely to be victims of violence rather than become violent. But these facts will not come to light with journalism in the state that it is in today. Not unless we become our own truth deliverers by living our lives with purpose and actively showing the media that anyone can have this illness, and we are successful because we are living with it.

 

So if you’re like me and are disgusted with the way in which the media keeps bringing up schizophrenia in a negative light just keep on keepin on. It’s all we can do. Just be one with who you are and continue to be positive. Be outspoken. Only we can change this narrative about schizophrenia.

Photos and Archive of Radio Interview with SARDAA Executive Director

SARDAA Executive Director Linda Stalters was interviewed on Small Business Today Internet Radio on April 16, 2014. Listen to archive: www.mjwjtalkradio.com

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The Cost of Not Caring: Nowhere to go

The Financial and Human Toll for Neglecting the Mentally Ill

More than half a million Americans with serious mental illness are falling through the cracks of a system in tatters, a USA TODAY special report shows.

The mentally ill who have nowhere to go and find little sympathy from those around them often land hard in emergency rooms, county jails and city streets. The lucky ones find homes with family. The unlucky ones show up in the morgue.

“We have replaced the hospital bed with the jail cell, the homeless shelter and the coffin,” says Rep. Tim Murphy, R-Pa., a child psychologist leading an effort to remodel the mental health system. “How is that compassionate?”

States looking to save money have pared away both the community mental health services designed to keep people healthy, as well as the hospital care needed to help them heal after a crisis.

States have been reducing hospital beds for decades, because of insurance pressures as well as a desire to provide more care outside institutions. Tight budgets during the recession forced some of the most devastating cuts in recent memory, says Robert Glover, executive director of the National Association of State Mental Health Program Directors. States cut $5 billion in mental health services from 2009 to 2012. In the same period, the country eliminated at least 4,500 public psychiatric hospital beds — nearly 10% of the total supply, he says.

The result is that, all too often, people with mental illness get no care at all.

by Liz Szabo, USA Today

Full Article

Electronic App May Help Schizophrenia Patients to Avoid Hallucinations

It turns out that the frontal lobe in the brains of schizophrenia patients does not function exactly the way it should. As a result, these patients have a lesser degree of impulse control and are unable to filter out their inner voices.

“Every one of us hears inner voices or melodies from time to time. The difference between non-afflicted individuals and schizophrenia patients is that the former manage to tune these out better,” the professor points out.

If patients could learn to stifle inner noise it could have a huge impact on our ability to treat schizophrenia, he states. To this end, Professor Hugdahl’s research group has developed an application that can be used on mobile phones and other simple electronic devices, to help patients improve their filters.

Wearing headphones, the patient is exposed to simple speech sounds with different sounds played in each ear. The task is to practice hearing the sound in one ear while blocking out sound in the other. The application has only been tested on two patients with schizophrenia so far. The response from these patients is promising, Dr Hugdahl relates.

–News-Medical

Full Article

Mental Health Now Covered Under ACA, but Not for Everyone

Several states are trying new experiments to ensure complete coverage, while others opt out altogether.

Mix mental illness with politics and the business of health insurance, add heavy doses of stigma and judgment, and it’s not surprising that providing mental and behavioral health treatment is as complicated as ever, despite promising language in the Affordable Care Act.

Provisions of the new law, along with the 2008 Mental Health Parity Act, represent the latest attempts to provide preventive services and comprehensive treatment for mental health that is equivalent to that provided for physical health. No oncologist would say, “You’re entitled to 10 treatments, and then your cancer coverage stops.” Yet that’s exactly what mental health patients have heard. No cardiologist would tell a patient, “If you relapse into high blood pressure, your treatment is considered a failure.” And yet that’s been the message to alcohol and drug addicts.

by Susan Brink, U.S. News

Full Article

Reelalities Film Festival Photos

Murphy Discusses ‘Helping Families’ Legislation at APA Assembly

Patients with serious mental illness have a right to treatment and a right to get better. That’s what Rep. Tim Murphy (R-Pa.) said in an address this morning to the APA Assembly, in which he discussed the bill he is sponsoring in Congress titled the “Helping Families in Mental Health Crisis Act” (HR 3717).

The congressman received a standing ovation following an impassioned talk in which he discussed the need to fix this country’s broken mental health system. Prior to his address, Assembly members viewed a brief video of Murphy grilling an official with the Centers for Medicare and Medicaid Services about the administration’s proposal earlier this year to eliminate antidepressants and antipsychotics from the Medicare Part D prescription drug program’s six protected classes of clinical concern. That proposal was rescinded after vigorous protests from Murphy, APA, and other medical and mental health organizations (psychiatric news, March 6, 2014).

A licensed clinical psychologist, Murphy described his own experience working as a volunteer at Walter Reed Medical Center with veterans with PTSD. He also recounted case examples from his home state of Pennsylvania of individuals with serious mental illness, unable to access treatment, who later killed themselves or others.

In January 2013, not long after the Newtown, Conn., shooting, the Energy and Commerce Subcommittee on Oversight and Investigations (of which Murphy is chair) launched a top-to-bottom review of the country’s mental health system. The investigation revealed that the approach by the federal government to mental health is a chaotic patchwork of antiquated programs and ineffective policies across numerous agencies.

In response, Murphy wrote the Helping Families in Mental Health Crisis Act.

–Psychiatric News Update

Full Article

I am My Brother’s Keeper

I first came to understand mental illness through my brother’s experience.

Never understanding what mental illness was until years later, I came to know my brother’s diagnosis as severe bipolar disorder. Watching my brother struggle is similar to observing a roller coaster: he will have manic episodes where he speaks quickly and paces up and down hallways. Then he will have depressed episodes in which he will lie in bed for days with a curtain drawn. There was one incident in which my brother stole my car and disappeared for two weeks and I did not know where he was.

Current HIPPA laws kept me from trying to help him. The HIPAA privacy rule kept me completely locked out of his care and I was powerless to help him.  The first time I encountered this roadblock was when my brother was admitted to the psychiatric hospital a few years ago. I went to visit him but he was gone. The nurse told me that she couldn’t give me any information about my sick brother’s whereabouts because of the privacy rule. So I was left to worry about where he was and what he might be doing. It was a wake-up call to realize that to help my brother, I could only count on myself and not the system.

For years I have been told by mental health professionals that my brother is an adult and can take care of himself. However, the truth of the matter is that he is not mentally capable of taking care of himself as I am now finally his caregiver.

I am my brother’s keeper.

–The Treatment Advocacy Center

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